Webberville Family Requesting Donations To Provide $16,000 Medical Treatment For 15 Year Old Daughter
February 1, 2014
By Kathy Morse
Madison (Maddie Jo) Norton was a normal happy 15 year old this summer. She made the Webberville Cheerleading and Volleyball teams. Maddie Jo was all ready to start her sophomore year at Webberville High school alongside her twin sister when on August 26, 2013 she started having seizure like events. She was having up to 30 a day. She also experienced age regression after the seizures not knowing in her mind what age she was, where she was or who she was. These could last a short period of time or up to a couple of hours.
Danny and Stephanie Norton who live in Webberville went to different doctors and hospitals trying to find out what was going on with Maddie Jo. Finally 2 Pediatricians tested her for PANDAS Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal infections. It is caused by a strep virus that makes her autoimmune reaction to GABS infection produce antibodies that continue to interfere with Basil Ganglia function causing symptom exacerbations. Onsets can be OCD neuropsychiatric symptoms, sensory or motor abnormalities. The antibodies in her blood are attacking her brain and causing neuropsychiatric conditions.
In layman terms, she has seizures 10-25 times a day and after the seizures she regresses usually lasting for a short period of time, but they sometimes last a couple hours where she may act like a 5-6 year old. The longer this goes on, the more danger of the brain damage becoming permanent. This former straight ”A” student full of life is now living in a bubble for lack of a better term.
Maddie Jo is in need of a procedure called IVIG. The treatment has a 62% chance of putting her in remission. The cost is $16,000.00 per treatment and has to be paid up front. The Norton’s are praying she will only need 1 treatment. The doctor has told the Norton’s If This Procedure Is Not Done Now She Will Have Permanent Brain Damage. Click here to go to the donation page.
The Norton’s have insurance through Stephanie Norton’s employer however it doesn’t cover Autoimmune diseases. They have exhausted all possible funds depleting their savings account, maxing out credit cards and selling everything of value to pay for all the doctors and hospital visits which required payment in advance and some billed out at $500.00 per hour.
Danny Norton who graduated from Williamston High School is the primary caregiver for Maddie Jo. Danny a former firefighter and EMT became the logical choice to provide the 24/7 care needed at home for Maddie Jo because she cannot be left alone. Danny who was self employed has not been able to work since Maddie Jo became sick. Stephanie is now the sole bread winner. The twins have a sister Sammy who is 24. The twin girls became aunts on December 2, 2013.
Currently Maddie Jo’s doctor is in Chicago. He has her on strong antibiotics for 2 weeks and then she will go on steroids for 1 week to build up her strength for the treatment. The IVIG treatment takes 2 days. The 1st day is 7 hours and the 2nd day is 6-7 hours long. Basically they will replace her blood with blood that has certain anti bodies removed. That way they will stop eating at her brain.
The Norton Family needs your financial assistance for the $16,000.00 IVIG treatments. A donation page has been set up for Maddie Jo’s treatment. Please click here to donate now.
Danny Norton said “This is the most embarrassing thing I have ever had to do, but I have to swallow my pride and get my little girl healthy” he continued by saying “If you can’t donate please say a prayer for her we need them as well.” Click here for “get well soon Maddie Jo” Facebook page to keep updated on her progress.